In August 2012 I was diagnosed with a Pineal Cyst measuring around 1.5cms. Most assumed to be benign and asymptomatic. In some patients, usually those with cysts above 1.0cms, these cystic tumours can cause a host of health issues.
For many years I’d experienced increasingly severe migraines, and right sided-headaches with visual disturbances, and field of vision loss. I also became incredibly sensitive to noise, light, smells, certain foods, medications, and many cosmetics and normal household products. I sought the advice of specialist Dr. Dong Kim at Mischer Neurosciences in Houston Texas who confirmed my cyst was causing many of my symptoms, but not all of them.
Once I’d returned from my trip to see Dr Kim, my Canadian Neurosurgeon and I discussed the option of costly and dangerous brain surgery to remove the tumour but decided against it due to the high risk, and concern about what was causing the symptoms unexplained by the presence of the cyst in the middle of my brain.Then on January 30th, 2015, my legs suddenly stopped working normally. It was like my brain and legs were suddenly unable to talk to each other. I ended up in
Then on January 30th, 2015, my legs suddenly stopped working normally. It was like my brain and legs were suddenly unable to talk to each other. I ended up in hospital, and after seeing many specialists and undergoing myriad tests and invasive and non-invasive procedures, eventually in March 2016 was diagnosed with M.E (Also known as Chronic Fatigue Syndrome).
Doctors also confirmed that I have Fibromyalgia and several other Central Sensitivity Syndromes, which affect my GI System, Immune System, Urinary Tract System, and Endocrine System. As a consequence of my health issues, I was unable to keep my business open and had to close my successful art and antiques store in September 2015.
Since then I’ve been disabled and unable to work. Additionally, I was recently diagnosed with Dysautonomia which is causing issues with my heart functioning and circulation.
These days, I am often housbound, although there have been periods of days or even weeks where things improve, and equally other times when I am pretty much bed-bound.
Thankfully, have been navigating all of this while living in the tiny house. People think that it’s got to be harder living in a small space but when you have ME, it’s actually a lot easier because everything is so close together.
In fact, was designed with functionality in mind. Plus, the house was built with aging in place, and disabilities in mind, so works well with my limited mobility, and other physcial and sensory disabilities. Actually, it’s ideal. Something I’m grateful for every day.