After several video posts and an open letter to Vancouver Island Health Authourity; regarding access to Assisted Living, and accessible housing, social supports, and healthcare, I finally heard that after appealing a second time with a new Assessment of my circumstances, I've been accepted for Assisted Living! Amazing news, although it may be months before I get a place. Thanks for the support - will keep advocating for #pwME around access to healthcare, housing, and social supports and asking @AdrianDix 'What about ME?'
There are 600,000 people with Myagic Encephalomyelitis living in Canada. We have the highest instance per capita of any country in the world and yet most of the Doctors and Specialists I've seen don't even believe it's a real disease. I am just one of #MillionsMissing all over the world. In Canada, things are particularly bad, with regards to lack of treatment and almost $0 research investment into causes and cures. It's not OK that we are ignored and denied the same standards of healthcare, or accessible, supported accommodation available to Canadian's with other illnesses. People with ME/CFS are effectively ignored, and left to manage alone. We have no Health Canada protocols for this illness. No research into causes and cures, and many left housebound and bedbound. Vancouver Island Health Authourity has no official protocols for patients with this illness. Nor for providing the same standards of social supports or housing supports available to people with other illnesses. It's totally unacceptable.
just one of the approximately 600,000 people in Canada living with Myalgic Encephalomyelitis (ME/CFS). With no education medical schools or universities about this illness and no money for research; no treatment protocols by Health Canada either, so I'm asking a serious question to Vancouver Health and Vancouver Coastal and all the Health Authorities and Health Canada - What about ME?
Informed by the Japanese Wabi-Sabi aesthetic, emphasizing the beauty of nature and organic forms, including their flaws; the materials were predominantly chosen for their patinas, weathering; and their relationship to Galiano island, and it's inhabitants.
A character building, imbued with local elements, and patinas, the palette and finishing inside evoke more of the same 'island vibe’ - sun, ocean, forest; not hewn fresh but aged and with some stories to tell!
Glorious day at one of the most beautiful places in the world.
The Supreme Collective website carries the cleanest, purest, medicinal cannabis products I have found, online, anywhere! They work with cannabis 'artists'. People at the very top of their game, producing exquisite cannabis and CBD oils, edibles, concentrates, tinctures, and topicals; as well as premium grade flowers and hash. But it's not just the quality of the products that sets this company apart; it's their ethos, and a true passion for compassion, and their dedication to providing the highest quality products, with the best possible support and customer service that sets them apart.
And this is why I live here, although it was actually the first beach trip this year
There are few things that bring me more joy than being able to spend some time (or even eat!) 'al fresco'. Today, I'm dog-sitting too, so that's an added treat, and although exhausted after a couple of hours, my canine companion is continuing to enjoy the ambience on my behalf!
Tough decisions today. The Community Nurse and I submitted my application for off-island Assisted-Living Accommodation; something I once believed wouldn't be a consideration until much later in life....